By the time Joey Ziadi was eight weeks old he had already suffered complete heart failure.
The tiny newborn was diagnosed with an extremely rare condition, which prevents his body from producing red blood cells.
Diamond Blackfan Anaemia (DBA) affects just 800 people across the world - 125 in the UK.
Little
Joey's only hope to prevent long-term damage is a bone marrow
transplant, but until then the toddler has to face blood transfusions
every three weeks.
The procedure ensures oxygen can get to Joey's vital organs, as his body is unable to perform the vital function.
His mother Kaisha Morris, from Northampton, said the regular transfusions are keeping her son alive.
The
35-year-old, said: 'It’s difficult having to take him for transfusions
every week because it must be so uncomfortable for him.
'They’re an absolute life-saver for him though.
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